Saturday, January 19, 2019

1/19/19 Weekend update

Gabrielle continues to sleep much of the time, with the only change being a shift from the couch to the basement to the bedroom.  When she is in the basement, we have the TV on in the background, but she is far from tracking on anything.  She isn't talking any more beyond saying a single word when we ask her where she wants to go: "upstairs", "bathroom".  However, for some reason, she did refer to the bedside commode we got for her as "Satan's spawn".  I have never heard her refer to anything by those words before!  We were just trying to make it more convenient for her.  At least we tried!
I believe her pain is under better control and we try and stay ahead of it.  She only has a minimal interest in food but we keep trying to offer her things, hoping to inspire her to take a bite of something.  This afternoon, she had one bite of cake that friends brought over...gee, I guess that means that there may be some left for me!
We have had some nice visits from the hospice nurse, Whitney.  She has been helpful in providing suggestions as to how to manage various symptoms.
I also wanted to relate some inspiring words from my brother, Paul, who texted me this week.  He has volunteered for many years (well over 20) at Camp Goodtimes, which is a camp on Vashon Island for kids with cancer.  Don't ask me why, but his camp name is Moose Lips.  He is quite the outgoing, charismatic guy.  He even has a tie dyed suit: jacket and slacks--looks like he is in a time warp from Haight Ashbury (another "old guy" reference).  The other day, he sent me these words:  
"People always say 'they lost their battle with cancer'.  That's BS.  Cancer warriors deal with the unimaginable and yet, your warrior wife has had her head held high and chose long ago to be very open about her cancer roller coaster in order to help others and she obviously has.  What a gift she has been to so many others who are out there struggling.  Tears are good.  Holding them could cause a pipe to break somewhere internally.  Tears are just love's way of overflowing from your body."  
Good, wise words, don't you think?
As I write these words, I am in the living room with the fireplace turned on (so much easier than a "real" wood fire), she is resting peacefully on the couch.  It's peaceful here, so much more peaceful than being in a cold hospital bed somewhere.
Every morning I give Gabrielle a good morning kiss and at night, it's three kisses.  She still puckers up, and at times she even smiles, especially if I have brushed my teeth first.  I am already looking forward to my goodnight kisses.  I'll brush first.  Maybe I'll get an extra kiss if I do.  
Oh, and just in case you are curious what a tie-dyed suit looks like (or one of my brothers for that matter), here it is.  As you can see, he got the good looks, and the good wardrobe.  Oh, and he just told me that you too can have a suit like this for $23.95 online from Walmart!





5 comments:

  1. Love those words from your Brother - and the suit! You all are taking such wonderful, loving care of Gabrielle. Please whisper to her that I love her ok? 💓 She is one amazing lady. 🙏

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  2. Wisdom runs in the family I see. And yes, ever so much better to be at home. Gabrielle is a heck of a champion, as are you Steve. I would wish you God's blessings, but he is already in the room with you. Peace.

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  3. All such great words that mean so much. Thank you Steve, Gaby and family for keeping us in the know. Love eternal,wishing peace abounds.

    Shannon

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    1. I pray for a peaceful transition. You've all done so well. I'd love to hold her hand one more time, but can see that she needs only her dear nuclear family now. She has had an amazing life. I'm so proud of her, and for the rest of our own lives we will all profit by her example in our various ways. Love to you all.

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  4. Steve - thank you. I think we've only met once (at UPC?) if that - and I know Gabrielle more from tales-from-SPU (and some also from UPC for years). Please know that your care and love are inspiring. I know these days from watching my warrior sister 7 years ago. They are hard but precious times. Your humor will carry you through - actually - all of the emotions (tears, laughter - all of it). Thank you and all of the family for being warriors as well. Peace be with you.

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